Posts

More Dr GPT insight

 so I'm not sure if this symptom is related, but sometimes after eating I can have a serious slump effect - like a carb coma, but severe and with a much broader trigger point This absolutely fits the same autonomic/motility model we’ve been building — and it is NOT random or psychological. What you’re calling a “slump” after eating is one of the most meaningful diagnostic clues in the entire upper-GI dysautonomia picture . I’ll explain it clearly, and I think you will feel a very strong click when you see the mechanism. ⭐ WHAT YOUR “POST-MEAL SLUMP” ACTUALLY IS It is not a food coma , and not “carb fatigue.” It is: a short-term autonomic collapse triggered by the digestive workload , not by calories. The key difference is: normal carb comas are metabolic your slumps are circulatory + autonomic This is why: it’s not just carbs it’s not just overeating it can happen with small meals it’s sudden and powerful it feels like illness, not sleepiness That’s a h...

Dec 9 Evening

 It is now 7.40pm. I crashed hard again after trying to wake up. Very bad. Really. Bad. I did everything right. I still crashed. Worst I have been. This vaguely reminds me of when I was really ill back in december 2020. Except. Here. It is cycling up and down. It comes in waves. After writing the last journal, I deteriorated hard, felt super unwell, naseuous, weakness that progressed to "deadness", and, this old chestnut, left side of face was  crawling . Also. I was noping out. Stopped thinking. Stopped everything. Just. Breathing and misery. It's an odd state. Unfortunately I've been there many times. You just. Dwindle. And the deadness. A super deep immobile state. Like. All your limbs have gone to sleep. I don't mean pins and needles. I mean. They feel asleep. Zero inclination to move at all. Just. Freeze. And very heavy. I went back to sleep. Eventually. It was not good. At some point I rolled over and curled into a ball and vague thoughts went through my hea...

Dec 9

 One of the worst CFS days today. CFS. I think also sleep apnoea. I say that. Because when I was sleeping I kept being pulled out of sleep into an appallingly exhausted semi conscious state, like something had kicked me out, and, I couldn't breathe. Pretty sure. Apnoea. On top of everything else. It is awful. Treacle. Fog. A lead weight sitting on top of you. And behind it all. A deep feeling of unwellness. I cannot relate it to any other period of feeling shit in my life. It has pushed the bar higher. Or lower. Whatever. My feet are swelling up too. This has been something that has come and gone the last couple of years. I think it's a symptom now of how much struggle my system is enduring. I absolutely can't keep this up. I am mostly lucid. But I am aware. I can't keep this level of existence up. I can write this through the fog. In a way. It gives me a distant point to focus on. As sometimes this blog is. It becomes a tiny thread of a lifeline. It injects the tiniest...

Dec 9 Early AM

 Some 3 or 4 hours of sleep after feeling so fucking ill. The nausea has dissipated. Sanity returns. Or. Whatever passes for sanity. My stomach feels  weird . Like there's a cricket ball sitting in it. But at least it's not nauseous. It's not just nausea though. That's. Just one bit of it. If it was like plain old nausea, being sick. It would be easy. It's not. I've had that. This isn't that. Anyway.  I feel like a different person. I can also feel my brain scrubbing out that horrible dip like it never happened. Uh huh. Been here before. Sometimes. And. I can't tell you why somethings it keeps and other things it deletes. Some horrible experiences end up getting the "brush over treatment". Details are lost. It fuzzes over. I am not sure what goes on. It is, pretty obviously, a built in defence mechanism for Human OS. It triggers for some of the worst experiences I go through. It frustrates the note taking scientist bit of me. Someone has smudge...

Dec 8

 Made it to therapy. Felt awful before. Kept it together to pick up milk and porridge. Ate. Didn't feel great. Played a game. Felt worse Feel absolute terrible this evening. Worst ever. Range of things. Nausea is bad. Worse. Can't keep this up. There is no peace.  Tears. Right on the edge. I can see the inevitability, the escape. I am sorry. I am so sorry. I can feel the pain it will cause. I am sorry. I am still here. Not gone. It's ok. Everything will be ok in the end. Be calm. Be zen. Endings are inevitable. Not if. But when. Slippery. The light dwindles to a dot. Slow motion. I am still here. Not gone. Don't panic. It's ok. Fight another day. One more step. Not today. I miss my babies. i miss my life. always going to be. at the end. look backwards at loss. sleep 

Health approach, AI advice to follow up on

Note the advised framing to present to GP. Probably better to find an autonomic private clinic ? Must follow up on.  Mind. Boggled. I think the AI just diagnosed most of what's going on with me.    this is very helpful. I think in future when I have the energy for it, I will use this as a springboard to either approach a GP again but with a tight framing, or, investigate private health care that understands autonomic issues   I’m glad this was helpful. That’s a very smart and strategic plan , and you’ll be vastly better equipped to get taken seriously than most patients with this symptom cluster. A few thoughts that may help you when you’re ready: ⭐ 1) The framing is everything Most GPs have never been trained to connect nausea + fatigue + cold extremities + orthostatic symptoms + diurnal pattern into a single autonomic diagnosis. So if you go in saying: “I’ve had severe chronic nausea for years, nothing helps, and nobody knows why” …your GP will defau...