Posts

Jan 1 - The Absolute Diagnostic Breakdown courtesy of Dr GPT.

 updating you on todays symptoms with my CFS, autonomic issues et al that we have talked about before. Today. I have.. what I call... "taken the piss". I had to do a physical task today, take my car to the garage to get it looked over. Involves me getting ready. Getting out of the house. Social masking. Getting home. I was very tired on getting home. But. Did *not* retreat to a resting state / position. My friend asked to play some games. Which I did so. I was very aware this was Not Good. And pushing past warnings, and what I know to be very punishing terrain. Stayed up as long as I could - nausea dramatically increased, exhaustion, brain fog, muscle pains. Pushed to the last moment. Couldn't even eat at that point, collapsed into bed. Couldn't immediately sleep... weirdly... too exhausted to immediately sleep. Then slept. During sleep could feel I felt "awful", horrible heavy exhuastion everywhere and a lot of muscle pain. Woke up 4 hours later feeling utt...

Jan 1

It is perhaps fitting that my literal first experience of 2026 was CFS related severe pain and body exhaustion. The all over submersion into the pool of acid. Every muscle squealing. This was my immediate thought on groggily coming to just before and during the New Years fireworks popping off. How apt my first 2026 moments where. Start. As you mean to fucking go on. But. How did we get here.   Yesterday I took the car to the garage to see if they could figure out its intermittent - probably wiring - fault. Whilst I had an attempt at resetting my hours, doing this is very hard for me, and I ended up with a halfway compromise of resting more, but, still fucky hours. Dropped the car off for 8am. Having not been to sleep. But felt reasonably ok. A moment of relative stability. By the time I got home from dropping the car off I was buzzy as fuck. And very much pushing my luck. But it was ok. Ish. I stayed up. Trying to reset my hours more. Pushing my luck more. My friend popped bac...

CFS, Me and ChatGPT - is CFS just always an autonomic failure ?

 So we've talked about dealing with chronic nausea before with regards to myself, CFS diagnosis and how you thought it was extremely likely I had autonomic issues. question. is CFS really just autonomic issues in all cases ? Short answer: no — but autonomic dysfunction is very likely a core subsystem failure in a large proportion of CFS/ME cases , and in some people it may be the dominant driver of symptoms. Long answer (the more accurate one): CFS/ME is not a single disease , it’s a syndrome —a final common pathway reached by multiple upstream failures. Autonomic dysfunction is one of the most common and explanatory layers, but not the only one. I’ll break this down carefully and mechanically, not hand-wavy. 1. Why people (correctly) suspect autonomic dysfunction A huge number of classic CFS features map directly onto autonomic instability: Symptom overlap Orthostatic intolerance / POTS Chronic nausea, early satiety Temperature dysregulation (cold extremities, sweating issues) ...