5th April
Eh, symptoms have quietened again after a day of less activity more rest.
That being said, yesterday I repaired a small hole in the steel bath. Probably.. 25 minutes of work. Knock out a small amount of rust. Rub it down with sandpaper. Fill with epoxy. By the end of it I had shaky legs, tired, eesh. After a late lunch and a sit down, I went back to bed, where I believed I didn't sleep, just rested, until Hazel informed me she had been up shortly after I went for a nap, hosed the garden and did a bunch of other noisy things I was oblivious to. Clearly I was asleep.
Still not managed to talk to my local GP yet about my results and update and yada. Slow. Slow. Slow. If you have so much money you don't care, I can highly recommend just getting all your healthcare via Harley Street to be honest. Talking of which, something occurred to me today. The hospital took 2 chest X rays during my cardio period of misery, and found nothing. Harley street finds 2 granulomatas. Is this the NHS just dismissing such things or actually not picking them up at all. It will be interesting to see if I can get my hands on my NHS MRI as well and whether similar "non detected" things occur there. All in all it does not give you a warm fuzzy feeling that your health is in good hands under the NHS. I guess however as a peasant I should be grateful I get any healthcare as opposed to allowed to die in a ditch somewhere for my liege lord.
I am getting a lot of "game" therapy in at the moment. Playing a good deal of Valheim interspersed with rest and eating properly. It also helps I'm pretty much never alone in there, talking to dudes that I have really enjoyed kicking around with and chatting about everything and nothing. It helps a lot to distract from the bumps up and down of my health that go on, and seems to be something that doesn't super tire me out. More cerebral things are tending to be less tiring for me than physical ones. Work tires me out, but at a slow rate. Games I seem to tire very very slowly. Physical stuff wipes me out in short order.
So let's be positive here, and state what has gone away -
No more waves of feeling horribly unwell. At worst I get a touch of slightly unwell / off colour.
Swollen throat / difficult to swallow seems to have pretty entirely disappeared after kicking around for 2 months.
Having major cardio events - definitely gone.
Heart palpitations have gone - or, now are so small and so uncommon that you can basically ignore them as part of "background noise".
Constant bloody headache on the left side. Gone. Headaches and migraines seem to have cleared off back to "normal" levels.
Stroke like symptoms, visual disturbances, forgetting words, stabbing pains in the left side of my head. Gone.
Feverish waves have entirely gone.
Very bad nerve zings. Feeling like my entire left hand side was ringing like a bell. Feeling my legs ringing like a bell. With major zaps of electricity up and down. 99% gone. Except for the fizzing, see below.
Weak left arm, weak legs in the morning, gone.
Brain fog.. not entirely gone. But a good deal better. Comes and goes a little, mostly goes however unless pushed.
Dizziness - not entirely gone - but far less common and less severe. This was pretty bad as of even a couple of weeks ago.
Eating - 95% of stuff doesn't seem to give me gastro problems anymore. That being said still haven't tried spicy stuff, and there possibly is a weird thing going on with sugar that *will* trigger a reaction and internal fizzing.
Remaining -
Tingles. Back. Face. Sometimes front. Fizzing internally at times.
Tired. Tired. Oh my god Tired. Perpetually some level of fatigue. Never ever feel well rested. Physically wipe out in short order if I do anything even vaguely physically demanding.
Tics. The worse I feel the more the tics creep in. Limbs that will jump slightly. Head. Left eye.
Random fleeting pains in the torso including chest pains. A very common ache bottom left rib cage, front to back emanating internally.
Sleep issues. Can't pull off a straight 8 hours unless I'm somewhat well medicated. Otherwise its 4, 5 or 6 hours. Then maybe another 2 if I'm lucky. Possibly a mid day nap. Slightly surprising as Citalopram typically makes me more sleepy. Not this time apparently.
Permanent panda eyes and a feeling that my eyes are being sucked into the back of my head at times.
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