Posts

Showing posts from January, 2026

Jan 1 - The Absolute Diagnostic Breakdown courtesy of Dr GPT.

 updating you on todays symptoms with my CFS, autonomic issues et al that we have talked about before. Today. I have.. what I call... "taken the piss". I had to do a physical task today, take my car to the garage to get it looked over. Involves me getting ready. Getting out of the house. Social masking. Getting home. I was very tired on getting home. But. Did *not* retreat to a resting state / position. My friend asked to play some games. Which I did so. I was very aware this was Not Good. And pushing past warnings, and what I know to be very punishing terrain. Stayed up as long as I could - nausea dramatically increased, exhaustion, brain fog, muscle pains. Pushed to the last moment. Couldn't even eat at that point, collapsed into bed. Couldn't immediately sleep... weirdly... too exhausted to immediately sleep. Then slept. During sleep could feel I felt "awful", horrible heavy exhuastion everywhere and a lot of muscle pain. Woke up 4 hours later feeling utt...

Jan 1

It is perhaps fitting that my literal first experience of 2026 was CFS related severe pain and body exhaustion. The all over submersion into the pool of acid. Every muscle squealing. This was my immediate thought on groggily coming to just before and during the New Years fireworks popping off. How apt my first 2026 moments where. Start. As you mean to fucking go on. But. How did we get here.   Yesterday I took the car to the garage to see if they could figure out its intermittent - probably wiring - fault. Whilst I had an attempt at resetting my hours, doing this is very hard for me, and I ended up with a halfway compromise of resting more, but, still fucky hours. Dropped the car off for 8am. Having not been to sleep. But felt reasonably ok. A moment of relative stability. By the time I got home from dropping the car off I was buzzy as fuck. And very much pushing my luck. But it was ok. Ish. I stayed up. Trying to reset my hours more. Pushing my luck more. My friend popped bac...