Posts

Jan 31

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 Seem to have settled into a pattern of almost always being at such an ill point that just about everything is impossible, with a lot of effort can do small things, like making something to eat. Often it eases up somewhat during the evening where I can actually make something to eat, a cup of tea etc. Sometimes it does not. And on those days I largely just spend the entire 24 hours in a haze of unwell. Lying down and being in bed helps the most. I am going through periods of intense sleepiness, and then periods where I can't sleep. Hap hazard. My hours are a mess. Everyday is some form of nausea. Not as bad as it was. Bad enough that it eliminates any want for food, destroys concentration, and just sitting in place increasingly makes you feel ill. Distraction helps. Sometimes a lot. Sometimes very little. Variable. All in all miserable. Just waiting for it to get worse really. Apnea has been worse last few days. Properly kicking in in places. Leaving me feeling woozy. Hazels better...

Jan 27

 My default state is now lower than it has been. Everyday is a malaise of unwell. Which often improves after many hours of waking. But even then. It's not good. It seems pretty clear that the screw has turned another level. The nausea has settled into an everyday background thing, that isn't as bad as it has been, but is a permanent queasy which rides up and down, but also, typically, gets better as an evening wears on. The nausea is also directly related to levels of wellness and energy, when the nausea is in effect it pushes everything much much lower. It is, what it is. At this point I am resigned to it. I am not hoping to get better. I am not seeking a solution. I am just waiting for it to finish me off, and that will be a relief. That's it. Don't get me wrong, if someone one day says, hey, here's a solution, I am not going to turn it down. But that's not going to happen. All of which is pretty miserable. I am on max mental meds. Just to level everything ou...

Jan 24

Sleep is more of a shit show than usual. I stayed up way late the other night, until dawn, finishing off some work that needed to get done before midday. I figured my choices were - try and rush it in in the morning when I would likely be dead, or, do it until dawn when I felt a little better, and then sleep. Neither are great options. The til dawn one is the better one for me however. Today I have mostly slept. Again. I said I would pop my head in to work today to catch up on a meeting and some jobs. Which I only just managed to do by 4pm. Today was asthma checkup day. A visit to the asthma nurse to have a quick chat about how its going and do a blood pressure check. Asthma care is one thing the NHS have got completely right in my case. They are proactive - they make appointments with me not the other way around. They listen. They care. They tell me to call under the slightest circumstance. It is all you could ask to be honest. No complaints. Today I rushed out to the appointment, qu...

Jan 23

 Been very ill. Nausea. Just feeling absolutely awful. The days blurred badly into dotted hours of wakefulness but mostly sleeping away the awfulness. Exhausted. Ill. Sleeping lonnnnnng. At it's worst I was getting around 4 hours of wakefulness in a day. Day. After day. After day. The end. Surely has to be nigh. Slowly this week I have started to feel a little better. Not good. Far from good. But up from where I was. The nausea lesser and greater still dogs me. My sleep schedule is again utterly ruined. On some of the days I have managed to drag myself online to play a game for a while with a friend. But it has been hard. He noted I was struggling. I have been so ill that all thoughts of doing anything but sleep and getting through a few hours a day were impossible. Everything stopped. I lapsed into not eating. I got to that familiar place where I couldn't eat. A strange place where the psychology suddenly flips and eating becomes awful. Something you don't want. Shy away f...

Jan 14

 Work today. Stomach has been nauseous and "weird" all day. At this point I can't tell if it's outright nausea or just a persistent anxiety cramp from the situation with Poppy. It's shit for Poppy. Shit for Hazel. But speaking personally. This is very hard for me. I am still very much dealing with the fallout of losing Athena, Ares, no dogs. The post dog gloom that has settled on me, the absolute hopelessness of the world et al. And then. I have a repeat performance to deal with. I am not trying to be selfish here, or make it all about me. It's not. But it is very hard. The worst thing for me to deal with right now. If you wanted to torture me, you'd be doing a pretty good job of it with the things that life is finding to throw across my path. Anyway. Today I have pushed out some work. Been somewhat productive. There were times when it felt like too much. The task I was doing also had some stress attached to it. Important. Critical. Fuck it up and it goes ...

Jan 13

 Last couple of days have not been good. The nausea is definitely back. Sticking with me throughout the day, hard to shift, draining me of all motivation and capability to do shit. I am sleeping a lot to escape the misery and also because I am permanently exhausted. Not good. Today, feeling ill yet again, just lying there about to watch some TV, a mini panic attack came over me, a sudden shift in anxiety about being ill, instant odd feeling in my stomach, dizzy head, sweat prickle, panic. Ok. Ok. Calm. Calmmm. I know we feel shit. I know it's never ending. But calm. It's ok. Fortunately it moved on pretty quickly. But left me feeling even more precariously fragile. My mentals have had enough of constant misery it would seem. Today I have spent all day trying to deal with it. Sleeping for a long period. At the end of the afternoon Hazel cried for help. I felt terrible. But responded. Tears. Hazel had got news back from the specialist. The prognosis was grim. About as bad as it g...

Jan 11

 Exhaustion kicked my ass hard today. I nearly ended up sleeping all day. Not really because sleep was necessary, but I was just exhausted. A mild malaise. And nausea. My mood turned downwards, unhappy with how ill I felt, unable to do anything, so very difficult to push myself up and visit the kitchen. Everything hard. Exhausting. It sucks. I have done my best not to fret too much about it. It is, just the way it is. The return of nausea everyday is really unwelcome. I was hoping it would just clear off. But apparently not. It is also sucking the life out of me. This evening I struggled to sit on the computer and play some games, and for a while my mind was taken off it all, and I slipped away to somewhere else. As good as it gets for me these days. The days wheel past, and I am unable to achieve sweet fuck all. My life just drips away in a twilight state of sleep and non functional short periods of wakefulness. Meh. I have been mulling over Our Glorious Leaders plans for the NHS....